5 year old Malachi was born with the genetic condition Neurofibromatosis. The condition causes tumours to grow all over the body, and at 15 months Malachi was diagnosed with an inoperable tumour on his optic nerves which, despite 18 months of intensive weekly chemotherapy, caused Malachi to lose his sight completely and he was registered blind before his second birthday.
Malachi recently received a Project Linus quilt. His special dog quilt is tactile, allowing him to experience the changes in texture and fabric. Malachi’s Mum Emma tells us that he snuggled up with the quilt as soon as it arrived and he now won’t sleep without his special quilt. It’s a small thing but it gives him real comfort during his frequent stays in hospital.